After we got back to my room it was a whirlwind. They immediately took Evan to the NICU and Randy followed. They let me try to nurse Roger while I was waiting for my epidural to wear off. They had me order food and made me eat before they would let me shower. Once I was showered we changed rooms.
I will write about each baby and their story separately as they both had their own challenges.
Roger-
Roger's blood results that they took right after he was born came back. He had low blood sugar and was COOMBS+. This means that his blood type conflicted with mine. We decided to give him formula as formula binds better with the red blood cells to help his body get rid of them. They said that he would most likely become jaundiced and would be put under the lights.
First time I got to hold both my boys!
Roger and I went to visit Evan the second day in the hospital
which is when this was taken.
They had me begin to nurse Roger for 10 minutes per side and then top him off with formula while I was still in the hospital. This way he could help my milk come in but still get the formula in order to help him. I also was pumping every 3 hours to start bringing my milk in as well so that Evan could have some stored up.
They did Roger's hearing test and he failed. They said that this is fairly common and that they'd try again later. The second attempt he passed! They also gave him his first bath. We're a little upset because they didn't tell us until after that they were going to do that. We both wanted to be there and it's still a sore spot for us.
Under the lights, we had to put socks on his hands
because he kept scratching at his chest.
Roger ended up under the lights the second day once they had retested his levels and saw they were rising. He was under the lights for 2 days and came out from under them after that so he could have his levels retested. His levels came back good and we were able to take him home that day! It was really hard to take him home without Evan. But it was also interesting because I got to see what it was like having just one newborn at home. It was amazing!
Roger going home!
Evan-
Evan's story is quite a bit longer than Roger's. Once he was in the NICU they hooked him all up to monitors and put him on oxygen since his level was low. He also got some formula to help with low blood sugar. That night we gave Evan a priesthood blessing. I got to see him for the first time since he was born that night. With him all hooked up to the IVs it just made it all too real how close we came to losing him before he was born. I immediately started crying and I was so grateful that we were allowed to give him a blessing because I knew it would help.
Evan all hooked up that first night.
The next morning we got good news! He was taken off oxygen during the night and was doing great! They told us if he continued to do well then he'd be able to come stay in the room with us. Unfortunately this wasn't the case, his temperature was too low because his little body couldn't regulate it and so he was put into an isolette to help him stay warm. We decided with the doctors that an NG tube would be best to help him gain weight and get stronger so his body could regulate temperatures better. He was also hooked up to an IV at some point though I don't remember the reason.
In his isolette.
The next day he was IV free! Though he still had his NG tube. They started allowing him to try to drink from a bottle and anything he wasn't able to drink they'd put through the tube. They wanted him to have at least 20ml per feeding. Each feeding he was able to drink more and more from the bottle. By this point my milk had come in and every one of his feedings was breastmilk! We made it a priority that he got any milk that I pumped. That night they ended up putting him under lights as well because he was becoming slightly jaundiced.
By the next day Evan was taking a bottle with every feeding and sucking them dry! They slowly were increasing how much he got per feeding so that it would continue to help his weight improve. He was also back out from under the lights and was now up to 23ml per bottle. They also started to decrease the temperature on his isolette so they could see how his body handled regulating his temperature. By this point I had been able to store 7 feedings of breastmilk for Evan and so we decided to stop formula with Roger and switch him completely to breastmilk.
By the 4th day they had turned down Evan's isolette temp even more. He also passed his hearing test and had been completely bottle fed for the past 24 hours. They decided that they could remove the NG tube at this point! He also gained back some of the weight he had lost and was almost back to his birth weight! They planned to continue turning down the temp and hoped that he'd be out of the isolette soon. By that night he had graduated from it! They then allowed me to try nursing him and he was doing great. One step closer to him getting to come home. They told us that as long as everything went good that night then he'd get to come home the next day.
Unfortunately, the next day we did not get the good news we hoped for. His temperature was sitting high despite being out of the warmer. They were going to watch them closely to see if anything was wrong that could be causing them. If they didn't go down then they'd run some blood tests. They said that he would for sure be staying at least one more night as a precaution. He is still gaining weight though! This means that he's not working too hard to eat with being warmer. I got a call later that afternoon as we weren't there and told me that they had decided to run some blood tests on him. All of them had come back normal so far. The only one left that hadn't come back was a blood culture which takes 48 hours. They had checked his arm pit temp at 2 and it was 101.3 so they cross checked it with a rectal temp which was at 101. So they were going to start some antibiotics to treat him as if he does have an infection of some sort. This meant he would not be coming home the next day and possibly not the next either. Not much later they called me again and asked for permission to perform a spinal tap to rule out meningitis. I gave them permission. We went to the hospital that evening and were given a whirlwind of info. The spinal tap had a little bit more blood in it than they have seen before and they weren't sure why. They were running more tests to try and figure out why. They started him on 2 antibiotics and 1 antiviral medication as a precaution. Then they did an ultrasound of his head to see if they could see anything that way. A couple hours later we got the ultrasound results. He did not have a bleed or anything else out of the ordinary. They also got the preliminary results back on his spinal tap. These were not normal, his white blood count was high compared to the red and his glucose levels were low. The doctor was in touch with some specialists in Denver to get their opinion and they recommended a full treatment for meningitis. This meant 2-3 weeks or more in the hospital and him being transferred to Denver. I was definitely crying at this point. They said they wouldn't do that right away but it could happen at any point over the next few days. There was also a small chance that they would not have to do this but it was an extremely small chance. That night we gave him another priesthood blessing.
All hooked up to his IV antibiotics and antiviral meds.
In his favorite place, the mama roo.
The 6th day they were still waiting for the cultures results to come back. They also sent the last little bit of spinal fluid from his tap to the children's hospital in Denver for them to do a broad spectrum test to see if they can find anything that could be causing all this by doing that. His temps are better today! This means that something is helping. He is also still gaining weight! He now was up 3oz from his birth weight.
We didn't get results until day 7 for all the tests they'd run. Everything by that afternoon had come back negative, including the meningitis! If everything came back negative then they'd do an MRI to double check that they didn't miss a bleed. By that evening every test had come back negative and they decided to go ahead with the MRI just as a precaution. They stopped all the antibiotics and the antiviral and they wanted to keep him at least another 24 hours to keep an eye on him. They did the MRI about an hour later and thankfully he slept through it!
The next day we got the MRI results. This is where it can get confusing. Because they usually don't take pictures of babies brains this is all speculation based off of what they think most likely happened. The MRI showed a slight excess of fluid around his brain. After looking closer they discovered a place where it looked like there was a small blood clot. They believe this clot caused a small bleed during birth causing the excess fluid. This explains the fevers and the blood in his spinal fluid. They are referring us to a pediatric hematologist in order to check for reasons behind the blood clot. They said the excess fluid will eventually be reabsorbed and that it is very possible that it was all caused by the trauma of birth. Good news is that as long as he does good tonight with no fevers and as long as he passes the car seat test he'll get to come home tomorrow!
The next day we got the best news ever!!! Evan got to come home!!! This was a huge relief and a blessing especially since only a few days earlier we thought he wouldn't get to come home for a month. 9 days total in the NICU.
Both babies in the car! Headed home!
A week later we made our way to Denver to meet with the pediatric hematologist. There he told us that Evan had had more than one bleed which was news to us and that he wanted to run some blood tests which is what we expected him to do. We told him the blood clotting factors that ran in my family. He called us with the results and everything came back normal for what they ran, which was for bleeding disorders, not clotting. He did not test for the clotting ones that ran in my family which really upset us. You'd think those would be the first ones they tested for. He wanted us to retest when he was a year old but we decided against that. If we do test him for anything we'll test for the ones that run in our family.
Home-
Having 2 newborns at home was a whole different ball game than having just one. After a few days of only getting 20 minutes of sleep every three hours I decided to no longer nurse and just pump and bottle feed. By doing this my schedule went from nursing both my boys, putting them to sleep, pumping 20 minutes per side, then sleeping for the 20 minutes or so before waking up to do it all again, to, pumping 20 minutes per side, feeding my boys, putting them back to sleep, and then I was able to sleep for around an 1hr 30 minutes before waking up to do it all again. Usually if they woke up before I finished pumping this was the time we'd play with them. They were both extremely good sleepers from the beginning but we were required to wake them and feed them every 3 hours per doctors orders since they were premie and had both been jaundiced. At least until they had doubled their birth weights which they did by 1 month old!
Both babies finally home!
Roger became slightly jaundiced again and so we
had our front windows open and let him
lay in the sunlight anytime we could
until the jaundice was gone.
Til next time!
Becca